BINOCAR Registers

British and Irish Network of
Congenital Anomaly Researchers



BINOCAR has REC approval as a research database: REC:09/H0405/48.


Medical research is important and the NHS plays an important role in enabling it.  The approval of research projects not only involves approval of the resources requested and financial implications of the research, but also of any ethical issues involved in the research.  NHS Research Ethics Committees (REC) have been established throughout the UK for many years to provide independent ethical review of all health and social care research to safeguard the rights, dignity and welfare of those participating in research in the NHS.


The REC is entirely independent of the researcher and the organisations funding and hosting the research.  The members of a REC are specially trained in research ethics and are required to review and give opinion on the ethical aspects of a research proposal.  These include patients, members of the public, nurses, GPs, hospital doctors, statisticians, pharmacists and academics, as well as people with specific ethical expertise gained through a legal, philosophical or theological background.  Research projects cannot proceed without REC approval.  The REC's task is to advise the NHS body under which the research is intended to take place but it is the NHS body that has responsibility to decide whether or not the project should proceed, taking into account the ethical advice of the REC.


For more information on REC, visit


PDF logoDownload BINOCAR REC approval letter (PDF | 129KB).


PDF logoDownload BINOCAR REC conditions of ethical approval (PDF | 202KB). 



Please contact individual registers for further details of research activities undertaken by BINOCAR registers.


To see the papers and reports produced by the BINOCAR registers please go to the publications section.