BINOCAR Registers

British and Irish Network of
Congenital Anomaly Researchers

Swansea 2014


Host Register



Scientific Meeting

Congenital Anomaly Registers: maximizing a valuable resource



7th October 2014



Dylan Thomas Centre, Swansea SA1 1RR


Keynote Speakers




Word doc Download the Scientific Programme (Word | 44KB)



Download conference presentations


Dr Shantini Paranjothy - Optimising anomaly data: researching cause and effect

Dr Maria Loane - Maternal first trimester lamotrigine exposure and risk of orofacial clefts: analysis using data from EUROCAT congenital anomaly registries

Dr Michiel Luteijn - EUROCAT Post-marketing surveillance for congenital anomalies

Professor Helen Dolk - European collaboration: the bigger picture

Jordana Peake - Pregnancy outcomes for neural tube affected pregnancies in different ethnic groups in the UK

Dr Nakul Gupta - Outcome of spina bifida in South Wales over a 10 year period 2004-2014

Kate Best - Long term survival of children born with congenital heart disease: a systematic review

Professor John Newton - Public Health England: opportunities for better coverage?

Professor Joan Morris - Accuracy of reporting abortions with Down syndrome in England and Wales

Ann Tonks - What congenial anomaly registers can tell us about screening programmes and their population effects: A model for trisomy 21

Dr Breidge Boyle - The prevalence and risk of Down syndrome in monozygotic and dizygotic multiple pregnancies in Europe: implications for prenatal screening

Professor Ronan Lyons - Data linkage: the key to long term outcomes

Cath Rounding - An evaluation of routine data sources for the ascertainment of hypospadias cases to the Congenital Anomaly Register for Oxfordshire, Berkshire and Buckinghamshire

Jibby Medina - Crane database - feasibility of linkage to the National Pupil Database to explore long term educational outcomes in patients with a cleft lip and/or palate


PDF logo Download the Scientific Meeting Poster (PDF | 224KB)


Word doc Download the Booking Form 1 (Word | 40KB)

Word doc Download the Booking Form 2 (Word | 28KB)- Payment is by cheque only, print out the booking forms and send to the address at the bottom of form 1.


Word doc Download details of Registers' Day (Word | 40KB)


Word doc Download Travel and Accommodation information (Word | 40KB) 


Word doc Download menu (Word | 632KB) - Dinner on Monday 6th October.  Please contact Helen to book a place and send all menu choices to  Payment of £35 by cheque to CARIS Public Health Wales.


Abstract Submissions

Please submit abstracts (around 300 words) using the template below to by Thursday 31st July 2014.

Word doc Download the Abstract Submission Form (Word | 40KB)


For enquiries please contact Helen Jenkins on 01792 285241 or email