BINOCAR Registers

British and Irish Network of
Congenital Anomaly Researchers

Swansea 2014


Host Register



Scientific Meeting

Congenital Anomaly Registers: maximizing a valuable resource



7th October 2014



Dylan Thomas Centre, Swansea SA1 1RR


Keynote Speakers




Word doc Download the Scientific Programme (Word | 44KB)



Download conference presentations


Dr Shantini Paranjothy - Optimising anomaly data: researching cause and effect

Dr Maria Loane - Maternal first trimester lamotrigine exposure and risk of orofacial clefts: analysis using data from EUROCAT congenital anomaly registries

Dr Michiel Luteijn - EUROCAT Post-marketing surveillance for congenital anomalies

Professor Helen Dolk - European collaboration: the bigger picture

Jordana Peake - Pregnancy outcomes for neural tube affected pregnancies in different ethnic groups in the UK

Dr Nakul Gupta - Outcome of spina bifida in South Wales over a 10 year period 2004-2014

Kate Best - Long term survival of children born with congenital heart disease: a systematic review

Professor John Newton - Public Health England: opportunities for better coverage?

Professor Joan Morris - Accuracy of reporting abortions with Down syndrome in England and Wales

Ann Tonks - What congenial anomaly registers can tell us about screening programmes and their population effects: A model for trisomy 21

Dr Breidge Boyle - The prevalence and risk of Down syndrome in monozygotic and dizygotic multiple pregnancies in Europe: implications for prenatal screening

Professor Ronan Lyons - Data linkage: the key to long term outcomes

Cath Rounding - An evaluation of routine data sources for the ascertainment of hypospadias cases to the Congenital Anomaly Register for Oxfordshire, Berkshire and Buckinghamshire

Jibby Medina - Crane database - feasibility of linkage to the National Pupil Database to explore long term educational outcomes in patients with a cleft lip and/or palate


PDF logo Download the Scientific Meeting Poster (PDF | 224KB)


Word doc Download the Booking Form 1 (Word | 40KB)

Word doc Download the Booking Form 2 (Word | 28KB)- Payment is by cheque only, print out the booking forms and send to the address at the bottom of form 1.


Word doc Download details of Registers' Day (Word | 40KB)


Word doc Download Travel and Accommodation information (Word | 40KB) 


Word doc Download menu (Word | 632KB) - Dinner on Monday 6th October.  Please contact Helen to book a place and send all menu choices to [email protected].  Payment of £35 by cheque to CARIS Public Health Wales.


Abstract Submissions

Please submit abstracts (around 300 words) using the template below to [email protected] by Thursday 31st July 2014.

Word doc Download the Abstract Submission Form (Word | 40KB)


For enquiries please contact Helen Jenkins on 01792 285241 or email [email protected].